Data Use Register

Here you can find details of all research projects approved to use NHS patient data through INSIGHT.

INSIGHT’s Data Use Register contains summary information for successful Data Use Applications to INSIGHT where a contract between the NHS Data Controller and the lead research applicant has been fully completed and secure access to anonymised data has been granted.

The Data Use Register provides an accessible record of how data is being used for research, by who and for what purpose, and offers a demonstration of the value and benefit of using health data. The format of the information presented in the Data Use Register aligns to recommended standards published by the UK Health Data Research Alliance for safe and responsible access to data for research and innovation.

Data Use Application 001

Project title:

Clinical audit and service improvement research study to analyse how the COVID-19 lockdown and associated interruption of ophthalmic services impacted on a selected population with incident neovascular age-related macular degeneration in England.

Lead applicant:

INSIGHT Data Use Case Exemplar

Data Use Application 003

Project title:

Deep learning for the automated prediction of diabetic retinopathy progression.

Lead applicant:

King's College London

Data Use Application 005

Project title:

Explainable Artificial Intelligence (AI) as the future of Automated Diabetic Retinopathy Image Assessment Software and the development of a retinal abnormality detection medical device.

Lead applicant:

Seon Diagnostics Ltd.

Data Use Application 007

Project title:

Optimising therapies and disease trajectories for patients living with complex multimorbidity using detailed information about eye health as predictors and outcomes (OPTIMAL).

Lead applicant:

University of Birmingham (UoB)

Data Use Application 009

Project title:

Predicting disease progression and treatment response in patients with diabetic retinopathy and diabetic macular oedema.

Lead applicant:

Roche Products Ltd.

Data Use Application 011

Project title:

Understanding the progression of dry age-related macular degeneration and its impact on visual impairment.

Lead applicant:

Janssen Research & Development, LLC.

Data Use Application 013

Project title:

Comparing Kalman filter and linear regression for prediction of visual field trajectories at Moorfields Eye Hospital

Lead applicant:

University College London

Data Use Application 015

Project title:

Benchmarking Human and Artificial Intelligence Model Performance for Retinal Disease

Lead applicant:

University College London; Moorfields Eye Hospital

Data Use Application 002

Project title:

Evaluating Medical Retina Service New Patient Pathways pre- and post-COVID-19 pandemic at University Hospitals Birmingham.

Lead applicant:

University Hospitals Birmingham

Data Use Application 004

Project title:

Open-Access Application for Artificial Intelligence (AI) assisted Diabetic Retinopathy Screening Based on UK National Screening Committee guidelines.

Lead applicant:

Orbis International

Data Use Application 006

Project title:

Predicting Disease Progression and Treatment Burden in Patients with Age Related Macular Degeneration.

Lead applicant:

Roche Products Ltd.

Data Use Application 008

Project title:

Components of Variability in Retinal Nerve Fibre Layer Thickness Measures from Ophthalmic Image Segmentation of Optical Coherence Tomography Scans on the Optic Nerve Head: A Retrospective Longitudinal Study on Repeated Measures Data Collected as Part of Routine Care on People with Ocular Hypertension Receiving Monitoring over Time at an NHS England Trust.

Lead applicant:

University of Birmingham (UoB)

Data Use Application 010

Project title:

Exploration of associations between retinal imaging and renal diseases.

Lead applicant:

University of Birmingham (UoB)

Data Use Application 012

Project title:

Replication of a non-inferiority study of artificial intelligence versus consultant-led-care treatment monitoring for known neovascular age-related macular degeneration

Lead applicant:

University Hospitals Birmingham; Newcastle University

Data Use Application 014

Project title:

Examining the Nature of Glaucomatous Visual Field Loss in Myopia Within 'Real-World' Clinics

Lead applicant:

Moorfields Eye Hospital

Data Use Register

Data Use Application 001

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Data Use Application 003

Project title:

Lead applicant:

Data Use Application 005

Project title:

Lead applicant:

Data Use Application 007

Project title:

Lead applicant:

Data Use Application 009

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Lead applicant:

Data Use Application 011

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Lead applicant:

Data Use Application 013

Project title:

Lead applicant:

Data Use Application 015

Project title:

Lead applicant:

Data Use Application 002

Project title:

Lead applicant:

Data Use Application 004

Project title:

Lead applicant:

Data Use Application 006

Project title:

Lead applicant:

Data Use Application 008

Project title:

Lead applicant:

Data Use Application 010

Project title:

Lead applicant:

Data Use Application 012

Project title:

Lead applicant:

Data Use Application 014

Project title:

Lead applicant:

The Health Data Research Hub for Eye Health