Data Use Register

Here you can find details of all research projects approved to use NHS patient data through INSIGHT.

INSIGHT’s Data Use Register contains summary information for successful Data Use Applications to INSIGHT where a contract between the NHS Data Controller and the lead research applicant has been fully completed and secure access to anonymised data has been granted.

The Data Use Register provides an accessible record of how data is being used for research, by who and for what purpose, and offers a demonstration of the value and benefit of using health data. The format of the information presented in the Data Use Register aligns to recommended standards published by the UK Health Data Research Alliance for safe and responsible access to data for research and innovation.

Data Use Application 001

Clinical audit and service improvement research study to analyse how the COVID-19 lockdown and associated interruption of ophthalmic services impacted on a selected population with incident neovascular age-related macular degeneration in England.

Project title:

INSIGHT Data Use Case Exemplar

Data Use Application 003

Deep learning for the automated prediction of diabetic retinopathy progression.

Project title:

King's College London

Data Use Application 005

Explainable Artificial Intelligence (AI) as the future of Automated Diabetic Retinopathy Image Assessment Software and the development of a retinal abnormality detection medical device.

Project title:

Seon Diagnostics Ltd.

Data Use Application 007

Optimising therapies and disease trajectories for patients living with complex multimorbidity using detailed information about eye health as predictors and outcomes (OPTIMAL).

Project title:

University of Birmingham (UoB)

Data Use Application 009

Predicting disease progression and treatment response in patients with diabetic retinopathy and diabetic macular oedema.

Project title:

Roche Products Ltd.

Data Use Application 011

Understanding the progression of dry age-related macular degeneration and its impact on visual impairment.

Project title:

Janssen Research & Development, LLC.

Data Use Application 002

Evaluating Medical Retina Service New Patient Pathways pre- and post-COVID-19 pandemic at University Hospitals Birmingham.

Project title:

University Hospitals Birmingham

Data Use Application 004

Open-Access Application for Artificial Intelligence (AI) assisted Diabetic Retinopathy Screening Based on UK National Screening Committee guidelines.

Project title:

Orbis International

Data Use Application 006

Predicting Disease Progression and Treatment Burden in Patients with Age Related Macular Degeneration.

Project title:

Roche Products Ltd.

Data Use Application 008

Variability in Retinal Nerve Fibre Layer Thickness Measures from Optical Coherence Tomography Imaging: A Retrospective Longitudinal Study of Ocular Hypertension Patients Receiving Monitoring over Time at an NHS England Trust.

Project title:

University of Birmingham (UoB)

Data Use Application 010

Exploration of associations between retinal imaging and renal disease.

Project title:

University of Birmingham (UoB)

Data Use Register

Data Use Application 001

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Data Use Application 003

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Data Use Application 005

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Data Use Application 007

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Data Use Application 009

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Data Use Application 011

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Data Use Application 002

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Data Use Application 004

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Data Use Application 006

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Data Use Application 008

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Data Use Application 010

Project title:

The Health Data Research Hub for Eye Health