Data Trust Advisory Board
The INSIGHT Data Trust Advisory Board is a key aspect of our governance
On this page:
The INSIGHT governance process
All applications to access data through INSIGHT are subject to a three-stage process:
An initial screening to ensure the research adheres to the ‘five safes’ (find out more on the About your data page)
An ethical evaluation of the purpose, value, and benefit of the research
Final approval by INSIGHT
The INSIGHT Data Trust Advisory Board (DataTAB) is responsible for stage 2 of this process, and will provide their recommendation for stage 3.
The DataTAB provides oversight and scrutiny to INSIGHT by:
Assessing and providing recommendations on individual applications to access data through INSIGHT.
Developing and regularly reviewing its own criteria to assess these applications.
Providing feedback on:
the process for granting or denying requests to access data through INSIGHT.
the outcomes from granting or denying access to data.
As citizens with a wide range of experiences, members of the DataTAB are encouraged to share their views and learn from each other’s insights. Working together, they will deliberate each request and build a consensus around it. They will then share their findings with the wider community.
The Terms of Reference for the DataTAB can be found here (PDF, 150 KB). To ensure transparency, minutes and recommendations from INSIGHT DataTAB meetings will be made public on this page in due course.
DataTAB criteria for assessing applications
Anyone who request data through INSIGHT will have to show in t, the DataTAB will ensure that all the following questions have been answered:
Is there a clear audit trail of how the data is being used and published?
Is there a clear clinical outcome, social care or public health outcome?
Does the proposed application pose a significant risk to individuals’ privacy?
Will data obtained through INSIGHT be linked to other datasets? If so, has the applicant considered the risks and offered a mitigation process?
Do we believe that the risk mitigation process(es) are realistic and sufficient?
Has the applicant taken into account public/ patients’ view when designing the project proposal? Has the applicant consulted public/ patients in the formulation of their research question/ project proposal?
Does the project outcome strike a good balance between public good, scientific discovery, value generation?
Will the proposed outcome disadvantage any group or individual?
“I'm passionate about overcoming the technical, cultural, regulatory and social barriers to better responsible data use in the NHS”
Jess Morley, DataTAB member
Members of the INSIGHT DataTAB
The DataTAB is central to INSIGHT’s commitment to involve the public, patients and others in deciding how it shares data and what research that data is used for. It represents a broad range of opinions, experiences and perspectives.
The current members of the DataTAB are listed here, with their extended biographies below.
Further information about the INSIGHT DataTAB
The DataTAB is currently developing the criteria it will use to assess applications to access data through INSIGHT. Once agreed, these criteria will be published here.
This page will also be updated with the dates of upcoming DataTAB meetings where applications will be assessed. The minutes from those meetings will also be added here.
“The acceptable future of fair and accountable use of health data needs public and patients at governance level, and DataTAB will spearhead this transformation.”
Dr Wen Hwa Lee, DataTAB chair