Data Trust Advisory Board
The Data Trust Advisory Board is a key aspect of INSIGHT’s governance
Members of the INSIGHT DataTAB
The DataTAB is central to INSIGHT’s commitment to involve the public, patients and others in deciding how it shares data and what research that data is used for. Its members represent a broad range of opinions, experiences and perspectives. Current members are listed below, with links to their extended biographies. Former members are listed on the DataTAB archive page.
Open Data Institute
The Open Data Institute (ODI) supports the functioning of the INSIGHT DataTAB. More information about this can be found in this series of blog posts on the ODI website. Members of the ODI Secretariat are also listed below. If you have any queries, please contact Tara Lee (tara.lee@theodi.org).
Dates of upcoming DataTAB meetings in 2024
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Feb 23rd
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Apr 19th
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Jun 7th
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Aug 9th
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Oct 4th
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Dec 6th
“I'm passionate about overcoming the technical, cultural, regulatory and social barriers to better responsible data use in the NHS”
Jess Morley, DataTAB member
Data Use Applications made to INSIGHT as of October 2022
Several multi-sector research organisations have made applications for INSIGHT datasets. The infographic below shows the breakdown of Data Use Applications by sector.
All Data Use Applications made to INSIGHT are subject to an ethical evaluation of the purpose, value, and benefit of the research by the INSIGHT Data Trust Advisory Board (DataTAB).
The INSIGHT governance process
All applications to access data through INSIGHT are subject to a three-stage process:
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An initial screening to ensure the research adheres to the ‘five safes’ (find out more on the About your data page)
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An ethical evaluation of the purpose, value, and benefit of the research
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Final approval by INSIGHT
The INSIGHT Data Trust Advisory Board (DataTAB) is responsible for stage 2 of this process, and will provide their recommendation for stage 3.
The DataTAB provides oversight and scrutiny to INSIGHT by:
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Assessing individual applications to access data through INSIGHT using the criteria developed by DataTAB (listed below). These criteria are regularly reviewed.
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Providing recommendations to the INSIGHT Data Controllers to accept or refuse an application based on this assessment.
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Providing feedback on:
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the process for granting or denying requests to access data through INSIGHT.
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the outcomes from granting or denying access to data.
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As citizens with a wide range of experiences, members of the DataTAB are encouraged to share their views and learn from each other’s insights. Working together, they will deliberate each request and build a consensus around it. They will then share their findings with the wider community.
The Terms of Reference for the DataTAB can be found here (PDF, 150 KB). To ensure transparency, minutes and recommendations from INSIGHT DataTAB meetings will be made public on this page in due course.
Criteria for assessing applications to INSIGHT
When assessing applications, the DataTAB will ensure that all the following questions have been answered:
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Is there a clear clinical outcome, social care or public health outcome?
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Does the proposed application pose a significant risk to individuals’ privacy?
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If there are risks requiring mitigation, do we believe that the risk mitigation process(es) is realistic and sufficient?
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Has the applicant taken into account sufficient public/ patient views when designing the project proposal? Has the applicant consulted the public/ patients in the formulation of their research question/ project proposal (where this would be appropriate)?
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Does the project outcome lead to value generation?
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Will the proposed outcome disadvantage any group or individual?