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INSIGHT Data

Here, you will find information about the data held by INSIGHT, the process for applying to use it, and how we assess individual applications.

Data available through INSIGHT

The datasets currently available through INSIGHT come from two NHS Trusts: University Hospitals Birmingham (UHB) and Moorfields Eye Hospital. The anonymised, longitudinal data they contain has been collected over many years through routine screening and treatment programmes, surgeries, regular follow-ups and emergency admissions. They include over 35 million retinal images (OCT scans and fundus/retinal photographs) alongside demographic information, treatment history, visual acuity tests and associated clinical health records.

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Data snapshot

Overview
Conditions

Our data comes from the largest tertiary eye care centres in the UK, spanning many conditions and co-morbidities. 

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15 datsets
 

platinum rated; plus bespoke dataset options

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35 million+

eye images

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2 million +

patients

Modality

Over 1,000 images are collected everyday through routine patient visits, and added to our data pipeline. 

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Diversity

More than 2.1 million patients reflecting the diversity of London and Birmingham.

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White

Other ethnicity

Asian/British Asian

Black/Black British

Mixed

Data catalogue

For a more detailed overview of the types of data available, including existing datasets, please click on the relevant heading below.  

Existing datasets
Existing datasets

Our existing datasets contain millions of eye images and linked clinical data. This data spans eye conditions and medications, in addition to oculomics data with linkages to systemic disease diagnosis. New datasets are added regularly.

Applying for INSIGHT data

To enquire about applying for INSIGHT data, please submit the form below, or email us enquiries@insight.hdrhub.org 

(We strongly recommend submitting the data enquiry form as a first step before making a formal application. You can find details of the full application process at the bottom of this page.)

Application form and guidance

Once we have received your initial enquiry, we will contact you to discuss your data proposal. If you would then like to make a formal application, please complete and submit the Guidance and Application form below:

 

For a detailed overview of the application and approval process, please refer to our flowchart.

To find out more about the Health Data Research Innovation Gateway, or for other questions,

please go to our FAQ page.

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