Patient and public involvement

Involving patients and the public in everything we do is one of our core principles


The Data Trust Advisory Board (DataTAB) is a key part of INSIGHT's governance, overseeing requests to access patient data. It includes patients and members of the public as full members.

Sense about Science

We've run a series of workshops with Sense about Science – an independent charity – to understand what patients and the public already know about health data research and to find ways to support understanding of INSIGHT. 

BRC Advisors

Our work with patients and the public is being supported by the NIHR Moorfields Biomedical Research Centre (BRC). They have created the BRC Advisors – a group of patients and members of the public with an interest in eye health. The Advisors have an INSIGHT working group to provide feedback about what we do and how we can communicate better.

Getting in touch

Whether it's a question you haven't found the answer to on our website, a suggestion about how to improve it, or a comment about any other aspects of our work, we want to hear from you, so please don't hesitate to get in touch.  You can also contact us with any questions you may have about your data and how it is used by INSIGHT.

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