Data Use Register

INSIGHT’s Data Use Register contains summary information for successful Data Use Applications to INSIGHT where a contract between the NHS Data Controller and the lead research applicant has been fully completed and secure access to anonymised data has been granted.

The Data Use Register provides an accessible record of how data is being used for research, by who and for what purpose, and offers a demonstration of the value and benefit of using health data. The format of the information presented in the Data Use Register aligns to recommended standards published by the UK Health Data Research Alliance for safe and responsible access to data for research and innovation.

Data Use Application 001

Project title:

Clinical audit and service improvement research study to analyse how the COVID-19 lockdown and associated interruption of ophthalmic services impacted on a selected population with incident neovascular age-related macular degeneration in England.

Lead applicant:

INSIGHT Data Use Case Exemplar

Data Use Application 003

Project title:

Deep learning for the automated prediction of diabetic retinopathy progression.

Lead applicant:

King's College London

Data Use Application 005

Project title:

Explainable Artificial Intelligence (AI) as the future of Automated Diabetic Retinopathy Image Assessment Software and the development of a retinal abnormality detection medical device.

Lead applicant:

Seon Diagnostics Ltd.

Data Use Application 007

Project title:

Optimising therapies and disease trajectories for patients living with complex multimorbidity using detailed information about eye health as predictors and outcomes (OPTIMAL).

Lead applicant:

University of Birmingham (UoB)

Data Use Application 009

Project title:

Predicting disease progression and treatment response in patients with diabetic retinopathy and diabetic macular oedema.

Lead applicant:

Roche Products Ltd.

Data Use Application 011

Project title:

Understanding the progression of dry age-related macular degeneration and its impact on visual impairment.

Lead applicant:

Janssen Research & Development, LLC.

Data Use Application 002

Project title:

Evaluating Medical Retina Service New Patient Pathways pre- and post-COVID-19 pandemic at University Hospitals Birmingham.

Lead applicant:

University Hospitals Birmingham

Data Use Application 004

Project title:

Open-Access Application for Artificial Intelligence (AI) assisted Diabetic Retinopathy Screening Based on UK National Screening Committee guidelines.

Lead applicant:

Orbis International

Data Use Application 006

Project title:

Predicting Disease Progression and Treatment Burden in Patients with Age Related Macular Degeneration.

Lead applicant:

Roche Products Ltd.

Data Use Application 008

Project title:

Variability in Retinal Nerve Fibre Layer Thickness Measures from Optical Coherence Tomography Imaging: A Retrospective Longitudinal Study of Ocular Hypertension Patients Receiving Monitoring over Time at an NHS England Trust.

Lead applicant:

University of Birmingham (UoB)

Data Use Application 010

Project title:

Exploration of associations between retinal imaging and renal disease.

Lead applicant:

University of Birmingham (UoB)

Data Use Register

Data Use Application 001

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Lead applicant:

Data Use Application 003

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Lead applicant:

Data Use Application 005

Project title:

Lead applicant:

Data Use Application 007

Project title:

Lead applicant:

Data Use Application 009

Project title:

Lead applicant:

Data Use Application 011

Project title:

Lead applicant:

Data Use Application 002

Project title:

Lead applicant:

Data Use Application 004

Project title:

Lead applicant:

Data Use Application 006

Project title:

Lead applicant:

Data Use Application 008

Project title:

Lead applicant:

Data Use Application 010

Project title:

Lead applicant:

The Health Data Research Hub for Eye Health